well, it's been a while !!!

I kinda gave up on my blog due to lack of follower's!! ( even cory doesn't follow me closly)  ha ha ha well it is a new day with new accomplishments!!!  Can't wait to see!!! 
thx for checking!!

lil T

A new but long day!

Lord grant me the serenity to accept the things I cannot change,
the courage to change the things I can, and
the wisdom to know the difference."

I am seriously trying to be patient with all the new information and new staff within our CF world!  But finding, that since it is Austin's health on the line, my patience is wearing thin.  We just had a new Doctor visit us and had no backgroud information on Austin's case... so was fully unaware of what is going on and of course had to 'run' off to a very important meeting!!!!   Right now I am in a very important meeting with my son and no one (physicians) seem to care!!   I am really trying to maintain composure but it is hard. 

I am going to continue pushing along and  try not to burn bridges along the way.

Thanks to everyone so much again for your continued prayers and support,

Be thank ful for every breath you breathe!

lots of hugs,
Tammy and Austin

Hospital update # 2--- Day 6

A pics just for an update!

These are pictures from the Hospital!

This was just after Austin's picc line was put in.  Very proud as he did it with no anesthetic!

Love you all for your prayers and support,

Be thankful for every breath you breathe!

lil T

Chateau Children's Hospital- Day 3

Well it has been a good day.  We accually were able to leave our room and walk around the hospital grounds.  It was nice to get some freah air and feel the wind in our hair!  They did have to clean the picc line area which is very painful.  But Austin made it through like a champ! I am going to attemp to attatch some pictures.  So you all (cory) can see what's going on!  Thanks again for all your prayers and continued support!

we love u all! 

Calgary.... day 2

Besides having medical difficulties, we encountered some technical
> difficulties! I hope to have them fixed! Ironicly i am able to fix
> the technical issues but not the medical ones.
>
>
>
> Yesterday we met with approximatly 12 docters,nurses,and other
> hospital personel. We first met with austin's head CF docter who was
> able to answer alot of our bacteria questions. He explained that
> B.Cepacia has 8 different strains and that some strains are worse then
> others, ... we are waiting to find out which strain we have! they
> will administer by iv, 3 different antibiotics to cover all the
> bacteria and infection that is in his body. I feel positive with the
> explation so far, but as i am experiencing orders can change within an
> instance! We"ve been able to walk free in the hospital... with a
> mask, and just as writing this they changed us to complete
> isolation!!! So I am not getting overly relaxed just yet!!! So...
> isolation means austin can not leave his room and all doctors and
> nurses need to gown and mask up before entering and disinfect upon
> leaving. I have been told ... so far that I am able to leave the room.
>
>
>
> After that meeting, we went off to CT scan for his siniuses. He has
> polyps in there that we knew have been blocking his sinius cavity and
> restricting his breathing. Well!!!! we found out from the CT scan
> that it accually has grown through the cavity wall of his sinises and
> will need definate surgery, this is a totally seperate issue from the
> bacteria but will need to be adressed immediatly once the bacteria is
> cleaned up. It can cause major issues with surrounding areas of his
> sinises... eyes, chin, and more. I am anxious to get more information
> about that.
>
>
>
> austin today did a fantastic job with getting his picc line in...
> it is a more permenant iv that can remain in for the full two weeks.
> Origianlly I requested austin to be put under but after alot of
> thorough discusion we concluded that he stay awake. i was so scared i
> had made a wrong decision (i couldn't be in the room with him which
> always makes both of us nervous) i waited for an hour in our
> room very nervously but it turned out to be soooo good. there were
> some minor complications but in the end it was alright.
>
>
>
> I am so blessed to have an incredible brave and strong son!!!! He
> has gone through so much and has heard some very devastating news with
> grace i will only wish to achieve.
>
> I want to thank each and every one of you for all your prayers,
> thoughts, and wonderful care packages that have been made for us!!!
>
> I pray you will be blessed because you have richly blessed us!! I will
> continue to update as things change.... My prayer is now that the
> medicine works and allows Austin's body to be healthy!
>
>
>
> Please......remember to be thankful for each breath you breathe,
>
>
>
> hugs to all,
>
>
>
> Tammy and Austin
>
>
>
>
>

Off to Calgary... 2 weeks...

Well the time is here again!  I will put my projects on hold and take a visit to the Children's Hospital with Austin.  At 4  months old he was diagnosed with Cystic Fibrosis and although we manage very well, everynow and then we hit a speed bump!  Now that I have a follower (my trusty brother)  will be more faithful to update more frequently!  Have a great night to all!!

 Remain strong, be thankful for every breath u breath!!

lil T

not quite yet!!!

Well i've been working on this now for a couple days ....  we don't think it is workimg... not toooo sure why?

well, in the meantime  enjoy life ... we only have one1

lil' T